Storytelling school

LUNGevity Foundation’s No One Missed campaign celebrates second year of #KnowYourBiomarker storytelling initiative to raise awareness of comprehensive biomarker testing in lung cancer

Awareness Campaign Highlights Importance of Biomarker Testing as Part of “KNOWvember” During Lung Cancer Awareness Month

WASHINGTON, November 1, 2022 /PRNewswire/ — LUNGevity Foundation, the nation’s leading nonprofit focused on lung cancer, today celebrates the second year of its #KnowYourBiomarker social media initiative as part of the No one missed campaign to raise awareness of comprehensive biomarker testing in non-small cell lung cancer (NSCLC).

The anniversary coincides with the start of Lung Cancer Awareness Month in November, which LUNGevity recognizes as “KNOWvember” to raise awareness of the importance for people living with NSCLC – and their healthcare team – to know their biomarker status to inform appropriate treatment for their type of lung cancer.

“Time and time again, we’ve heard stories from people with lung cancer about the difference comprehensive biomarker testing has made to their treatment journey,” said Andrea Ferris, President and CEO of the LUNGevity Foundation. “Throughout the past year, No one missedThe #KnowYourBiomarker initiative has provided an outlet for patients, loved ones and healthcare providers to share their unique stories and let people know why this test is essential. As we enter the second year of this initiative, we are continually encouraged by the strength of our community and their willingness to share their stories in hopes of helping others who have been diagnosed with NSCLC.”

#KnowYourBiomarker invites people living with NSCLC and their loved ones to tell their biomarker stories. Here are two examples of people with lung cancer who shared their biomarker testing experiences as part of the #KnowYourBiomarker initiative.

Laverne McDonald, New York, NY
Biomarker: EGFR

As a professor of social sciences at New York City for 20 years, Laverne McDonald knows firsthand the value of lifelong learning. It’s a philosophy she applied when faced with a diagnosis of stage IV lung cancer in 2018 at the age of 52. Lavern underwent several tests and eventually ended up at Mount Sinai Tisch Cancer Center, where a CT scan revealed tumors in her lungs. She was assigned an oncologist, and that’s when she heard about biomarker testing. Soon after, she learned that the cancer was EGFR-positive, which meant she was eligible to receive targeted therapy specifically for her type of cancer.

AJ Patel, Irvine, California
Biomarker: ROS1

When husband and father-of-three AJ Patel was diagnosed with stage IV non-small cell lung cancer (NSCLC) in 2013, he was told he had just six months to live. He spent a week in despair before making a call to the LUNGevity Foundation that changed the entire trajectory of his diagnosis. Through LUNGevity’s network of mentors, AJ discovered biomarker testing. He soon learned that the cancer was positive for a mutation called ROS1 which could be treated with targeted therapy. Nearly nine years later, AJ is living life to the fullest and has seen his three children go to college, where all three are pursuing a medical degree.

As part of KNOWvember, No one missed will host a one-hour Facebook Live event in conjunction with BlackDoctor.org at 7:00 p.m. ET on Wednesdays, November 9: “Lung Cancer Awareness Month: Coping with a Lung Cancer Diagnosis and Advocating for Treatment.” Panelists will discuss the importance of screening, the steps to take to receive a diagnosis of lung cancer, and the importance of biomarker testing to inform treatment, among other topics.

Want to share your own biomarker story? Join the #KnowYourBiomarker conversation online.

About No one missed Country

No one missed is a grassroots campaign led by the LUNGevity Foundation and comprised of patient advocacy, pharmaceutical and biotech organizations. The mission of the campaign is to raise awareness of comprehensive biomarker testing as an essential part of every non-small cell lung cancer (NSCLC) diagnosis and to enable patients with NSCLC to discuss comprehensive biomarker testing with their healthcare team. For more information about comprehensive biomarker testing, including resources people living with NSCLC can use to discuss testing with their healthcare team, visit NoOneMissed.org.

No one missed is backed by founding partner AstraZeneca; by early members Amgen and Sanofi; by supporting members Genentech, a member of the Roche group, and Pfizer Inc.; by members AbbVie, Daiichi Sankyo, Merck & Co., Inc., Regeneron Pharmaceuticals and Thermo Fisher Scientific. In addition, No one missed is supported by partners ALK Positive, Academy of Oncology Nurse & Patient Navigators (AONN+), EGFResisters, Exon 20 Group, the International Association for the Study of Lung Cancer, Oncology Nursing Society, KRAS Kickers, MET Crusaders, MYLUNG ConsortiumMTNTRKers, RETpositives, ROS1ders and University of Chicago Global Cancer Medicine Center.

About the LUNGevity Foundation

LUNGevity Foundation is the leading national lung cancer organization focused on improving outcomes for people with lung cancer. The foundation works tirelessly to advance research into early detection and more effective treatments, and to ensure that patients have access to these advances. LUNGevity seeks to have an immediate impact on the quality of life and survival of all people affected by the disease, while promoting health equity by addressing disparities along the continuum of care. LUNGevity provides information and educational tools to empower patients and their caregivers, promote impactful public policy initiatives, and amplify patient voices through research and engagement. The organization provides an active community for patients and survivors – and those who help them live better, longer lives.

Comprehensive resources include a medically vetted and patient-centered website, a toll-free helpline, the International Lung Cancer Survivorship Conference, and an easy-to-use clinical trial search tool, among other tools. All of these programs aim to achieve our vision: a world where no one dies from lung cancer. The LUNGevity Foundation is proud to be a four-star Charity Navigator organization.

Please visit LUNGevity.org to learn more.

SOURCE LUNGevity Foundation